30 DAYS/30 STORIES® 2022
My name is Dominique. I am the proud mom of two amazing little humans. I have the privilege of sharing this life with my fiancé, Jash. Our children are the focus of our lives. Our oldest is Aiden, and our youngest is Kapri.
When Aiden was 15 months old, we found out he had a tumor in the left frontal lobe of his brain. He underwent a craniotomy on May 27, 2021. Two days later, Aiden walked out of the hospital full of energy, wanting to run and play. We were beyond thankful.
On June 20th, Aiden went on his first airplane ride. He was excited and mesmerized! Little did he know, he was flying to Pennsylvania from Florida to start treatment. Our little family was relocating so that he could undergo treatment at Children’s Hospital of Philadelphia.
Aiden went through 6 chemo treatments, totaling 41 chemo infusions, 3 stem cell transplants, several surgical procedures, all before the age of 2. He faced everyday with an amazing attitude and spirit. The amazing nurses at CHOP called him "The Backpack Boy". He loved having his backpack full of toys and fidgets. He was ready to go at all times! They loved to come to the room just to see him!
Throughout treatment he loved to see “all the peoples". His interactions were limited to the treating staff and the kids and people seen through his hospital room windows. Aiden adored his baby sister, Kapri. He loved laying beside her, talking to her, singing to her, teasing her with his toys, and simply just looking at her. She helped to make his time at the hospital more tolerable for sure.
Aiden finished treatment and rang the bell on December 31, 2021. Ringing the bell is a milestone every family/person walking this journey looks forward to. Aiden was finally able to go home and recover.
He embraced every waking minute like no other. He enjoyed playing with the Christmas tree ornaments, taking walks in the winter air, seeing the snow fall, and playing with it for the first time. Aiden was able to spend time at home surrounded by his family without interruption. He gave so many kisses and hugs to those he loved, especially his baby sister. He celebrated his second birthday via Zoom with family near and far. We were all looking forward to slowly introducing him back into socialization. Everything was going in the right direction, or so we believed.
Unfortunately, on March 7th, we found out the brain tumor came back and that it was inoperable. Aiden was admitted to the ICU, and we were introduced to hospice. We were told we had days to weeks left. Wow…how do you move on when faced with this news? The knowing that we were preparing to experience the loss of our beautiful baby boy, our strongest bigger guy, was heartbreaking. But there was no choice other than to wrap him in love and move forward.
Aiden maintained his fighting spirit. He came home and kept moving forward. He was baptized into the Eastern Antiochion Faith (this is when he inherited the Saint name of Luke). He took communion every week from baptism until his passing. On good days, he found peace in being held, being read to, playing with his toys, watching his movies or shows, and keeping an eye on his lil Kapri. We are thankful to have had the opportunity to spend family time with Aiden at to zoo. We wish we had the chance to experience his reaction and taste of exploration. We wish we had more time!
Aiden held on to life with so much strength and dedication. Aiden maintained his presence until God called him home on May 10th, 2022. His presence is still carried through us today and will be every day for the rest of our lives.
PCFLV helped to make pretty tough times a little more bearable. We are thankful for the gas and food gift cards, along with all the emotional support and help with his funeral. Thank you PCFLV for being there!! Thank you for the continued support as we face the fact that Aiden is in "Heaven Camp". The hard work and devotion they have to every single kiddo and their families is greatly appreciated.
Written by Aiden’s parents, Dominique and Jash
Please consider helping children with cancer and others in our community by scheduling a blood donation at Miller-Keystone Blood Center: https://donor.giveapint.org/donor/schedules/zip